NoniM Lupus Foundation — Established 2016

PURPLE WINGS

There is room
for you here.

A community for lupus warriors and caregivers.

A place to belong.

Purple Wings brings together people living with lupus and those who care for them — a community built on understanding, connection and support.

Our communityA welcoming space for lupus warriors and caregivers.
Finding connection
Lupus Warrior registrationA voluntary registration pathway is being prepared to help the Foundation understand community needs.
Join Purple WingsJoin Our WhatsApp Group

PURPLE WINGS

Community Guidelines

Our Community. Our Support. Our Safe Space.

Purple Wings is a supportive community where lupus warriors, caregivers and families can connect, share and encourage one another.

To keep our group safe, respectful and welcoming, all members are asked to follow these guidelines:

  1. 01 Respect Everyone

    Treat every member with kindness, dignity and understanding.

  2. 02 Confidentiality Matters

    Do not share screenshots, conversations or personal information outside the group without permission.

  3. 03 No Judgement

    Everyone’s lupus journey is different. Respect individual experiences.

  4. 04 Share Responsibly

    Personal experiences are welcome, but do not present personal opinions as medical advice.

  5. 05 No Medical Prescriptions

    Never advise members to start, stop or change medication without consulting a qualified healthcare professional.

  6. 06 No Advertising or Spam

    Unauthorised promotions, fundraising requests and unrelated links are not permitted.

  7. 07 No Bullying or Discrimination

    Harassment, offensive language and personal attacks will not be tolerated.

  8. 08 Support One Another

    Listen, encourage and offer compassion. Sometimes members simply need someone who understands.

  9. 09 Respect Group Boundaries

    Do not privately contact members without their consent.

  10. 10 Admin Decisions

    Administrators reserve the right to remove inappropriate content or members who repeatedly disregard these guidelines.

URGENT HEALTH DISCLAIMER

Purple Wings is a peer-support community and is not a medical facility, emergency service or substitute for professional medical care.

If you experience severe, sudden or worsening symptoms, seek immediate medical attention. Do not wait for a response from the WhatsApp group or its administrators.

In a medical emergency in South Africa, call 112 from a mobile phone or 10177 for an ambulance.

Never delay emergency treatment while seeking advice or reassurance from other group members.

OUR PROMISE

Purple Wings is a space of compassion, hope, understanding and unity.

We may live with lupus, but we do not have to face it alone.

Together we rise. Together we support. Together we fly.

An initiative of NoniM Lupus Foundation.

Join the conversation

Express your interest in the Purple Wings support community.

NONIM LUPUS FOUNDATION

You are not alone.

GET INVOLVED ︎